Take Care of Yourself
Women and men with metastatic disease often feel isolated. Others, who finding their stories too scary may not want to listen, and family & friends may not be able to deal with the seriousness of the situation. Luckily there are many people living with breast cancer recurrences and metastatic disease willing to help you at a click of a mouse. These resources include:
- METAvivor.org: Provides support for people with metastatic breast cancer and funding for research on metastatic breast cancer.
- Metastatic Breast Cancer Network: Support resources, Information, funds research on metastatic breast cancer.
- Metastatic Breast Cancer Alliance: An advocate-led alliance of organizations and individuals working together to transform and improve the lives of people living with metastatic breast cancer.
- AdvancedBC.org: Provides information and support for patients, family members and friends of individuals living with advanced breast cancer.
- Young Survival Coalition: Offers a Metastatic Navigator guide for young women.
- Latinas Contra Cancer: Offers education and support for the Latino population in Spanish and English.
- Sisters Network: A support organization for African-American women that is committed to increasing attention to the devastating impact breast cancer has in the African-American community.
- Living Beyond Breast Cancer: Offers support and a breast cancer help line. Phone: Call toll free (888) 753-LBBC (5222)
- BCMets.org: An online community of women and men living with advanced breast cancer.
- Brainmetsbc.org: Provides information for women with breast cancer that has metastasized to the brain.
- Financial Resources for Cancer Patients
- Assistance Speaking to Your Doctor about Treatment
- Looking Good with Cancer: Tips for Looking Your Best
- Online Communities For Cancer Patients
- Legal Resources for Cancer Patients
Metastatic Breast Cancer Alliance (NCCN) Guidelines for Patients:
Helps patients talk about the best treatment options for their cancer with their physicians.
Online Tool for Supplements & Effect/Interaction with Cancer Treatments:
Memorial Sloan Kettering Cancer Center’s online tool for supplements/herbs and their effect/interaction with cancer treatment (estrogenic, interactions, etc). Don’t just take supplements because you read somewhere it is good for “this or that”. There could be terrible interactions. There is also an App.
Help for Caregivers – Caregivers need help too:
Help For Cancer CareGivers:
Help for Cancer Caregivers is a unique collaboration of organizations with a shared goal of improving the health and well-being of the people who care for people with cancer. Please be sure to tell any caregivers you know about this site.
CareGiver Action Network:
The Caregiver Action Network is the nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age.
CareGivers – CancerCare:
CancerCare provides free, professional support services for caregivers and loved ones, as well as caregiving information and additional resources.
Informative Blogs by Women with Metastatic Breast Cancer
– Lisa Bonchek Adams
Through Lisa’s world-wide following and her ability to touch hearts and minds, the circle of mutual love and support she created with her writing continues to inform all who seek insight, wisdom, and practical advice. She addresses the far-reaching emotional impact of illness, death, life, family, sadness, joy, and sorrow. Lisa expresses her experiences as a wife and young mother of 3 with terminal breast cancer, writing about the darker, richer emotions — aimlessness, fear, despair — and the dogged commitment to always be strong with an enthusiasm for life. Her posts often give insights into how to raise children who are resilient and can cope with inevitable hardship. I found a lot of helpful medical information in Lisa’s blog I could not find any place else. Her commitment to bringing awareness and scientific solutions to the prevention and treatment of metastatic breast cancer continues through her research fund for Memorial Sloan Kettering Cancer Center.
Dr. Susan Love’s Breast Book: by Dr. Susan Love
Every woman needs this book! Widely considered the standard reference on all aspects of breast care, Dr. Susan Love’s Breast Book has been called “the bible for women with breast cancer” by the New York Times. Dr. Love’s book uses the warm, supportive, and candid tone that has brought confidence to millions of women to help each reader plan her own path after a breast cancer diagnosis. The sixth edition explains exciting advances in targeted treatments, hormonal therapies, safer chemotherapy, and immunologic approaches as well as new forms of surgery and radiation. And it includes extensive guidance for the increasing number of women living for years with metastatic breast cancer.
Walking with God through Pain and Suffering: by Timothy Keller
The question of why there is pain and suffering in the world has confounded every generation. New York Times bestselling author Timothy Keller—whose books have sold millions of copies to both secular and religious readers—explores one of the most difficult questions we must answer in our lives: Why is there pain and suffering?
Just Show Up: The Dance of Walking through Suffering Together: by Kara Tippetts
In Just Show Up, Kara and her close friend, Jill Lynn Buteyn, write about what friendship looks like in the midst of changing life seasons, loads of laundry, and cancer. Whether you are eager to be present to someone going through a difficult time or simply want inspiration for pursuing friends in a new way, this eloquent and practical book explores the gift of silence, the art of receiving, and what it means to just show up.
And It Was Beautiful: Celebrating Life in the Midst of the Long Good-bye: by Kara Tippetts
In her final book, Kara offers gentle reflections on living and dying well. She invites us to cultivate soft hearts even when we face great disappointment. Her ideas for living are hard-won, wrestled within the crucible of family, illness, and faith. Her constant reminder is whether we are in the midst of dark days or mundane moments life is surprisingly beautiful, and God is forever good. This is a great book for anyone going through trials of any kind – not just cancer.
Heaven: by Randy Alcorn
Earth can’t keep its promises, but Heaven does. Randy does an awesome job of answering people’s toughest questions about what lies on the other side of death. This book is the fruit of his biblically disciplined study and his sanctified imagination. Heaven will inspire readers to long for heaven while they’re still living on here on earth.
The Problem of Pain: by CS Lewis
C.S. Lewis, a former atheist and one of the most renowned thinkers, examines a universally applicable question within the human condition: “If God is good and all-powerful, why does he allow his creatures to suffer pain?” With his signature wealth of compassion and insight, C.S. Lewis offers answers to these crucial questions and shares his hope and wisdom to help heal a world hungering for a true understanding of human nature.